Understanding your Neuroendocrine Cancer Diagnosis

I am a NET's patient. I have stage 4 as its in my lung, my mediastinal lymph node metastized to my liver my small intestine and my pancreatic area not the pancreas itself. I dont suffer from any GI issues , I suffer from the exhaustion and loss of breath due to the somatostatin being right on my heart. Thank you posting Its very hard to get information thats not 5 or 6 years old but i need to see it .....64 and still here....

My one found is free floating, not in an organ. I have a PET scan in two weeks. My tumor is grade 2. Can there be multiple in the body at once? Or is it usually just one?

This disease killed my loved one. This is a very bad cancer and rare one at that.

Mines was discovered in my pancreas which metastasis on every organ except lung but looking at me you wouldn't even think I have cancer. My mission is to offer hope to those who where given a poor prognosis like me. I cried for six months after my diagnosis then I confined to my Beautiful powerful God and he produced a miracle. I was given months but I'm six year in God is Able.

Thank you

Even though this video is over a year old, I feel the need to thank you for making it. I'm 18 years old and in August of this year (2019) I was diagnosed with a neuroendocrine tumour on my appendix. By the time they found it, they had already removed it because I had had a appendectomy about a month prior due to an appendicitis. I was lucky because it was found very early - only grade 1 and well differenciated but it was still very scary to hear the word tumour being pronounced and I didn't really know what it meant. A month later (September) I did a second surgery, a parcial colectomy, because it was agreed between my doctors that it was the best way to make sure they had removed every little bit of the tumour and monday this week I got the results back and I'm clean. Now I will be followed by a doctor every six months in an oncology specialized hospital. This video really helped me after my diagnosis because it helped me understand what it was and what it all meant. Thank you a lot for posting it.

Thank you.