Living with Autism

I’m a behavior analyst, and I specialize in working with children with Autism. I’m so excited to watch this episode and hear from a different perspective!

she is a SIGMA INFJ . just one of the smartest people on earth .

as a person with autism, who got diagnosed at 21, thank you for this episode. i relate to this person on a deep, deep, level. i grew up in a family where nobody was diagnosed autistic and my mother was a psychologist, who was around autistic individuals on a daily basis. i did not fit the mold of what she knew and what she learned in school. i did not fit directly into one or two criterion. i was exhausted constantly trying to fit in, and when i didn’t, i was told to just “try harder” and “be more outgoing,” which i knew wasn’t possible for me. however, due to the fact that i didn’t have a well rounded view of what it meant to be autistic, i was in the dark for many many years. thank you for bringing awareness to this topic, and for bringing awareness to all the topics you discuss on your show. thank you for giving a voice to us ordinary people, navigating neurodivergent life in a neurotypical dominant world.🤍

This women is super smart & so well spoken & sweet

This was so hard to listen to lol 😂

I resonate with Daisy so much, the bullying, the not knowing you have it, the books/toys, the blurting without thinking. I HAD THE SAME REASONING FOR WANTING A DIAGNOSIS. I love you already.

as someone who’s autistic i can say that i have really really great social skills… to an extent. i can read rooms very well, help people when i see they need it, and i am almost TOO empathetic. but i think where it gets me is how honest i am, almost no filter sometimes. it’s crazy to see the different sides of the autism spectrum i love this episode !

science doesn´t care about feelings or history
1. Aspergers people develope language skills early in life, earlier than typical people.
Autistic people have a delay in regards to that.
2. Aspergers people could pass as someone with a different personality.
Autistic people are clearly perceived as naturally limited in some areas.

sheldon cooper: aspergers
my name is khan: autistic
so... just because the origins of the term... are they the same?

science it´s objective in all the other diagnosis... but a NEUROTYPICAL person decided that it´s not kind to look at those specific differences.
the lack of objectivity its morally reprehensible, specially now if you compare it with a trans person.

I’m quite bothered my the fact that the guest speaks about autism in general but I can see very clearly that she takes her own case as general. She didn’t research it thoroughly which is not great when you have some exposure like that. Being autistic doesn’t give you the knowledge to speak about it in broad terms if you didn’t research. I’m autistic too (and with ADHD) and I read a lot of scientific papers on recent research. Well 5 minutes into the video and I’m already mad at the lack of precision and even plain false stuff she is portraying…

not autism there is absolutely no way someone with actual sensory issues wears so much sensory hell indicing things. i get made fun of all the time because i have to wear the same set of baggy clothes every day because i have actual sensory hell. this isn't cute. attention starved girl.

I only just recently got diagnosed with ADHD in my adulthood so that I could experiment with medication and see if it helps me. I have long suspected that I have it (my brother got diagnosed when he was little and both I and my mother show symptoms) but ADHD is also under-diagnosed in women and I had never had noticeable trouble in school the way my brother did. Except I did, it was just internal trouble that I compensated for by over-working myself. My brother had all of the stereotypical signs as a child, and so I got over-looked, and I never noticed that not everyone else has the same experiences in school growing up. Even believing that I had ADHD for most of my life, without external support or acknowledgment for why I was having trouble, I just decided it was my responsibilty, which over time began to feel like shame - why is everything so hard? why does everyone else seem to have an easier time with homework or with getting ready in the morning? Apart from medication, the official diagnosis has helped me be kinder to myself and actually offer ~myself~support, to believe that I am having real problems and not just "being lazy". I don't have autism (probably) but there is so much overlap between neurodivergent experiences, and I feel this so hard

I love this guest!!! She explained everything so well! My family is Autistic/ADHD. Thank you for sharing this, you’re helping NT people understand better! Thank you!!!

I just found your channel & am so glad I found it by this particular guest. Daisy was amazing!!! Anyone not familiar with ASD would learn so much from her & I love her trying to educate! I love Daisy mentioning stuffed animals & Squishmellows! We've well spent a lot of money on both because we know just how important it is for them to have. They both are owned by each of their prospective cats, which have helped them in so many ways we couldn't have imagined! And also EDS (Ehler's Danlos)!!! I have EDS & have had significant problems as a result. So I can 1000% under what she's going through! Both of my kids have it too... my daughter is extremely hypermobile like I was at her age!
My son is 11, was diagnosed with ADHD & ASD at 5, & is considered "lower needs." In actuality, he just has a different kind of needs. He has echolalia, tics, needs more support in english & writing, has more behavioral things, some issues with social cues. But he's considered "twice exceptional" which is "gifted" & also has ASD, social, & loves playing with friends & cousins. My daughter is 9 & was diagnosed with ADHD around 4. I took them both to have an updated psycho-educational eval 2mo ago. The psychologist told me she wanted to test my daughter for ASD... & she was officially diagnosed. She needs more support with english & writing as well, she is a social butterfly, & we call her our "animal whisperer." But she has more rigidity with change, rejection sensitivity. They both have sensory issues... they differ in some ways but the same in others. They are both incredibly empathetic, stand up for others, but are also very blunt. Looking back, just as we did when our son was diagnosed, we see things so much clearer. My knowledge & experience prior to having kids & especially since my son was diagnosed, should've made me realize my daughter was on the spectrum. I carry a lot of guilt but am also so thankful for the psychologist I found who did their evals! I will be forever grateful because I can better myself as her Mom and be there in a much better way for her!
I will always fight & advocate, not just for my kids, but all the kids!!! In our home is full of neurodivergance & we celebrate our weird because that is what makes us unique & beautiful! ❤

my favorite episode. my 5 year old son is autistic. a lot of what she said i notice in my son, it was fun to relate to some degree 🩷

Autism is a disability?

Most of the times I got in trouble growing up was completely unexpected. Like one time I brought a pupa I found in my backyard because bugs were my special interest all through elementary school (i wasn't even grossed out by my lice and was madddd confused why my roomates had to be combed out) anyways my teacher was super pissed and I FOSHO cried

I just avoid people lol

FLASH CARDSSSS‼️‼️‼️😻😻😻🫶🫶

I’m not an expert on autism but I hope she really does have autism & isn’t just a weird quirky girl who has trouble making friends

I am not diagnosed with ASD, though I really suspect I have it. It took me til age 28 to be diagnosed with ADHD inattentive type. if i were to have ASD, i'd be considered to the public eye as extremely low needs...due to how long i've worked on trying to make myself seem "normal". i have the ability, for a lot of time, to seem like i'm functioning "normally". it's only temporary though. as soon as I get alone with nobody else around, i break down. pretty much everything that this guest spoke on applies to me. almost every video i watch that explains autism is resonant with me. i'm having a hard time finding doctors to take me seriously. Outside of the medical scope, my peers who I disclose my ADHD to question whether i'm lying or not. that might be one of the hardest obstacles of being neurodivergent...neurotypicals would rather believe we are: lazy, rude, weird, unorganized, unsociable, etc than to believe that our brain functions differently. imagine feeling the pain of an illness like cancer, and nobody believes that you have it (definitely no comparison of conditions here, just trying to give an example)

thank you both for this episode. it's great for everyone to hear this

I have ADHD and autism and I have amazing social perception. I wouldn’t say I have social “skills” per se because I am very awkward and bad with small talk. But I pick up on social cues insanely well to the point where I have severe social anxiety. I pick up on every negative tone change or body language. I can tell very easily someone’s true behavior when just meeting them. If an autistic person tells you someone is untrustworthy or 2 sided, trust them!

i am not diagnosed but i do experience a ton of stuff that she does especially with freaking out over little things, being good with talking but a lot of times not realizing how blunt im being because its just how i am, etc. people have told me i act strange and i take it harshly because i’m also an extremely sensitive person and have lost friends because of that. i have no idea how to get diagnosed or anything but people have said i show symptoms of neurodivergence and my mom and i are currently trying to get me diagnosed with adhd but i am worried that if i may have both then i wont ever know because it really really freaks me out to mention it to my doctor. my mom said “you don’t have autism” but in a kind of condescending and negative way like it is a bad thing. i have had sensory experience that have been insanely bad for me especially now since i have been noticing my actions and thoughts more. i want to know what is going on with me so bad!

I have found in women that autism often has 0 to do with the stereotypical "symptoms" I found when peeking into my medical charts as a kid that the word "depressed" was written everywhere. I was around 10 or so and was really being treated and tested for endocrine problems, but I had always maintained a steady frown at all unknown adults, like doctors, and I often refused to answer them or said whatever I could to get the interaction over quickly. They made little jokes and stuff to try to get a smile or a laugh, and I felt disgusted and confused by such. So when I saw that depressed was what they were writing, I knew that my odd behavior compared to other kids like that was why. But I knew I didn't feel depressed, and was confused why they automatically assumed the way I didn't want to be messed with by weirdos placating at me like a baby or pet animal instead of asking me straightforward questions with no references to childish things or rhetoric meant I was necessarily depressed.

Wow she has done such a a good job of explaining things!! Autism adhd ‘support that people need to function’…..

I'm an autistic guy, and I don't even know how to explain the condition very fluently to people when put on the spot so I'm a bit impressed by how well Devorah explained it. She seems to have empathy and an understand of people that I truly wish was more common in this world.

I don't think I have autism but maybe I have some autistic traits

One of the best interviews!

I’m autistic and I love blue lights 💔

My. God. DAISY. I. Love. You. Same experiences with friends in childhood. Same same same. Thank you for this. You are beautiful.

I was diagnosed at 23, almost 28 now. I am learning so much about my autism by watching this. I was diagnosed, given the paper and a pamphlet of what autism is and was sent on my way. No help or therapist was recommended. I eventually found one and had to pay ridiculous money to have and use the resources and then that therapist moved to Spain. I have no psychological support now still of why I do what I do. I just know I have a diagnosis.

I love her ❤

But no no no don't vaccinate any kids

This episode means so much to me as someone with autism <3

So glad I found this channel

all of these incredibly long paragraphs from self diagnosed autistic people are so beyond boring and ignorant. as well, it’s painfully obvious a lot of you think you sound way more intelligent than u actually are. u also mostly all claim to have “incredible social skills” although the words that follow almost all immediately disprove that statement. 😂😂😂🥱🥱🥱

I had no idea about the history behind the term Asperger’s. That is so shocking and gross. I can totally understand the desire to separate from the term.

I went undiagnosed for about 15 and 16 years, I was first diagnosed with ADD(adhd without the hyperactivity) and then two years later with ASD type 1. In hind sight I and my family and friends has realized that a lot of things I did as a child was a sign of my ASD and ADD. I later developed depression and an eating disorder, we didn’t know why but the psychiatry later said it could be from all the years I was misunderstood because of my diagnosis. I felt relieved when I was diagnosed both times and I now go to a school for people on the ASD spectrum but life is still hard❤

Living with autism? We're all insane? Yes, those two sentences go together.

I was just diagnosed with ADHD at 40. I always felt a little different from others and I was often labeled as lazy which really hurt my feelings, but I just accepted it. I have lots of noise and light sensitivity and have never been tested for autism , but maybe I should?

You could use her name in the description

as someone who is late diagnosed as well, it makes me emotional to think that all of these feelings of being other than my peers wasn’t something wrong with me and that other (autistic) people have had a similar experience

OMG! I'm autistic and listening to this was exhausting! Her talking is so drawn out, lol! My head was literally spinning 😩 😂

As a (very) late diagnosed autistic woman, I loved this episode. Especially the discussion around vacciness! Both of my children received all the normal childhood vaccines, one is autistic and one is not. Being autistic is NOT the worst thing that could happen to a person! Yes, it comes with struggles but it doesn't mean you can't have a "successful" life. I could go on forever about how this has impacted my life and the life of my autistic child... but the bottom line for me is that I actually love the way I think and live my life. Also... squishmallows are the best!!!!

I was diagnosed at 27, and im female. I actually spoke early and in full sentences. I also walked and ran early. So nobody caught on. I really struggled until i got my correct diagnosis.

Absolutely everything Daisy discussed, resonated with me, save for 1 item. I have spent roughly 30 minutes trying to intentionally select my words here, and it came down solely to Daisy's description of her mistreatment at the hands of Autistic males.

My list of diagnoses match Daisy's almost identically (ASD, ADHD, GAD, CPTSD), as well as self-diagnosed BPD, OCD-Dermatillomania, and (not a neurological or psychiatric malady, but I've struggled with it for decades) Ehlers-Danlos Syndrome. Anyway, I'm so sorry her experience with many autistic men have seemed apathetic to her...

I wish I had encountered this podcast sooner to hopefully acquire further details on her experience, because until this conversation, I've honestly never encountered anybody who's Autistic (from the lowest to highest needs, verbal or non-verbal) who wasn't also regularly overwhelmed by their empathetic sensitivity. To the point where I've considered the ol' truism that Autism somehow meaning a lack in empathy to be obscene/insulting, as all I've ever witnessed was their polar opposite.

My take regarding ASD, as far as a shared pathos might exist, has been in regards to Communication, an existential need to understand, to facilitate understanding, and to be understood being foundational to our mental well-being & core to instances of overstimulation/meltdowns when failures in effective communication remained unresolved.
My own personal struggles surrounding communication led me to reading cover to cover & internalizing (when I was 8) my grandparents' Webster's Unabridged dictionary. To this day, I can't really recall it at will, but most/all of it's still locked away up there. Spelling, definitions, synonyms/antonyms, even etymology in some instances. This made me quite insufferable in my younger years since, for better or for worse, I was never equipped for maintaining the artifice necessary to mask...

I'd posit this emotional/empathetic maturity & existential necessity to communicate and to understand to be why/how our bonding with animals tends to be so instantaneous & seamless. I've genuinely lost count of how reliably I've inadvertently disarmed pets that were otherwise considered aggressive. And all that I can really attribute this phenomenon to, is my autism. Obviously, I can't possibly say this is identical, or even similar, to anybody else on the spectrum, but I do hope.

Something Daisy touched on briefly, that I wanted to revisit. Though autistic special interests are about as subjective as fingerprints, I've found the fascination with the form & function/dysfunction of systems to be pretty much unanimous. Be they macroscopic or microscopic, cosmic, natural, biological, mechanical, electronic, electrical, mathematical, scientific, political, judicial, historical, interpersonal, chemical, metallurgical, stoichiometric, musical, etc. including any systems introduced in video games, card games/trading card games, D&D, Warhammer/WH40k, and any other media.

I'd love to examine any empirical or anecdotal examples anyone might have supporting or opposing my observation, as the juxtaposition of how enthralled I and other autistic people tend to be with understanding these systems, neurotypical people tend to find them a profound source of boredom. The contrast is quite stark.

"Nobody believed me" ouh yes ... my life ... that's my life ...