Susannah Cahalan at TEDxAmsterdamWomen 2013

Strep infections can also cause autoimmune encephalitis.

Thank you for sharing this with us

Just watched Brain on Fire on Netflix and landed on this video. She is a revolution in the field of neurological studies. Thanks to Dr Najjar also and Dr Khan who approached Dr Najjar.

More power to you Susanah

I had this last year and thankfully recovered. Was crazy to read your book and sse all the parallels, thank you Susannah

Jesus saved you .. not luck .. Jesus!

I am leaving this comment as I am sitting outside of the of our neurologist's vet office while my mini dachshund is getting her chemo treatment. I wish I could personally thank the doctor, the sweet girl whom went through this and her family for sticking by her. Our dog has made it to the age of five because of them! She has been fighting for a long time! We thought she had a stroke after her 4th birthday. We watched her start to have symptoms months before. Our normal Veterinarian kept thinking it was different things. After her not being able to hold food down for a long time. She was emaciated and we had to take her to an big city emergency vet because our appointment was not for another couple of weeks. She wouldn't' have made it. She stayed there for a week on IVs for fluids to keep her going and had to have a feeding tube put in her neck. They did extensive testing. Then they explained what was happening, we knew it would be a long road. A week ago I heard about her book and watched the movie 2 days ago. I cried seeing what she went through and she couldn't communicate what she was going through to us being an animal. She is an amazing girl! A fighter and we are her soldiers fighting every step of the way with her. 💪 We are not done yet. She won't be the same before but she is alive and doing so much better. I wish I could pin medals on everyone's chest that has led the way for this disease and tell them how much I love them. Without all of them she would not have made it this far. 😘

Your book is worth to read Susanna. Thanks for putting all of ur struggles in this tiny book which has every word describing the full story of that moment. You are so strong, more power to you. ❤️❤️

my clock is 3/4's full but i'm still fighting. haven't found a doc yet. but i'm fighting

I've been a schizophrenic for 30 years and I understand her fear. It's nice to see one of us recover with medical intervention.

My bestfriend had viral encephalitis a few months back and she was incredibly lucky to have been diagnosed early on. She got the treatments she needed and now she is finally on the right track for recovery. When i met her for the first time after she came from the hospital, I couldn't believe that it was her. She couldn't talk or move without someone's help. For weeks she was just in that confused state where she didn't remember minor details like who was our history teacher in 10th grade (she got the disease when she was 17) She would randomly get paranoid and tell me that she was scared. it scared and confused me to see her like that but slowly she improved and now she is almost the person she was used to be and I believe she is getting better everyday. I'm just so glad she got the treatment she needed at the right time. I do believe that more awareness should be made about this disease and how easily it can be misunderstood.

Thankyou for this TedTalk!!!

Very similar has happened to me too... I was very fearful all of the time and wanted to kill myself even in front of the family few times and in the hospital. I am still having PTSD from the psychiatry gard they have put me in for 2 weeks and after the hospital I still had nightmares and few times I was waking in the middle of the night or couldn't sleep alone. I hope it will get better. I had lost my job too and my boss was like Susanna's pretty harsh in the end and didn't care about the illness really.

Dr. Najar is an immigrant from Syria and Steve Job is a son of immigrant from Syria those are small examples of what you might gain from having immigrants in the US but the clown with the orange face decided to block people in certain countries ( Syria was one of them ) to come to the US back when he sadly ran the country.

That’s what worries me 80%recoverd xxx

It is along word but we now say it so easily as we are living with a daughter with it I’m praying to god in heaven she recovers

She got spinal tap

Like you say we knew something was not right my other daughter faught so hard to tell them she is not insane something isn’t right and she won. She got them too look further. But like you say she would say things like am I going to die and I am rich I killed a Baby which of course she never did was seeing spiders and spirits was so sad never new us she also always at the beginning put her hands out and clinching her hands we gave her a squished she would squeeze it and then rip it up and then say why did I do that or say why is no one helping me

My daughter first symptom was she was fainting then seeing as she explained in early days matrix like motions her phone tv people then seizures non epileptic ones migraines mumbling nonsense on and of then psychotic lots things we kept getting wrong diagnoses we had never ever heard of this disease they eventually realised she had a teretoma tumour on her ovary has been removed So painful and cruel disease she was a nurse and loved her job worked through covid and this is what was around the corner for her horrific disease

My daughter has this and is still in hospital today June 16 th 2022 I’m looking to see how long roughly after plasma exchange and rituximab Her confusion stops Ashe is now going back to the angry punching stage again it seems to be always wanting to eat as her short memory is lost and thinks she is starving very very painfu to watch this

The smartest people in science are Arabs and Jews like Einstein and Al-Khwarizmi, the inventor of algebra

Well, it's good that you're doing something about it. Maybe your story will help others. It was a creative way to diagnosis.