Complex Regional Pain Syndrome (CRPS)

I was just diagnosed today. I've been in pain for so long and am now trying to find out what I can about this.

Not crps

CPRS goes away once you zap your brain with a gew sessions of ECT

I just want my life back and wanna be an athlete again man my military career is in the balance I just want to run and jump again😓

Almost 30 years ago I broke my left wrist. I developed, what they called at the time, Reflex Sympathetic Dystrophy. My wrist and had became very swollen, were grey in color and extremely painful. When the doctor removed the cast, I passed out from the pain. He sent me directly to the pain clinic. There they injected me with a nerve blocker. After several injections my pain subsided. I went to therapy for 12 months to restore the range of motion in my wrist. I has not bothered me since. I sympathize with those who have endured this condition for years.

Recently, I somehow developed compartment syndrome in my left calf. I had to have an emergency four compartment faciotomy during which they made two long incisions in my calf to relieve the pressure. I was in extreme pain for several weeks. I am now, after weeks of wound care, am on the mend. I am wondering if the two conditions are related.

Thank you for the excellent video.

My father went undiagnosed for over 15 years, but a few years ago they finally diagnosed him with CRPS. Last month they gave him KETAMINE for the first time and he started to feel better... Unfortunately, my father couldn't take the pain anymore. I buried my father a few days ago and I wish I could go back in time. To all those suffering from CRPS, please try EVERYTHING you can. We BELIEVE your pain. Don't lose hope. We love you!!

Nature is beautiful

This ruined my marriage. My wife gave up on everything because of her suffering. There is nothing i can do

Any time you see the words psychological support as a treatment option, you know you are in for a world of hurt.

Could brain surgery work where you intentionally cut out the pain center of the brain. I'm sure it's a complex procedure but might be worth it if one is suicidal. You will feel no pain after that... That has its own set of limitations but they pale in comparison to the initial disease. God luck.

I have delt with this hell pain for ONLY the longest week in my life, all new to me. It's down my left arm, in my elbow and forearm.

It's from an old nerve injury 25 years ago whereas my arm was pinned under the beam of a trailer house that fell across my chest , nearly crushing me in half.


I feel like my arm is being twisted and ripped from my body. I feel like I'm in a nightmare. I have gotten very little sleep and when I do it's very short interrupted by a painful awakings.

My ER visit 6 days ago did not know what was wrong but thankfully got me a bottle of weak pain pills that seems to help numb the pain briefly but is wearing off quicker each day. Im down to just a few pills and it's Christmas Eve. I'm sad, scared and tired both mentally and physically.

Only the last 2 days have I realized what I may be dealing with.

I've lost some simple movements in my arm at the elbow and thumb to finger movement. I tried playing my guitar with no power to do so.

I'm reaching out to anything to help but see there is very little cures or successful treatments.

I hope that nobody I know ever has to experience this.

Why do you give the Wrong information!! It can start in those areas AND SPREAD THROUGHOUT YOUR ENTIRE BODY INSIDE AND OUT - HEAD TO TOE!!! INCLUDING ALL YOUR ORGANS AND ANY INJURIES /SURGERIES YOU'VE BEEN LUCKY ENOUGH TO ACQUIRE.. don't listen to anything you hear about this disease! NO ONE GETS IT RIGHT! ❤️‍🔥DO NOT TAKE VACCINES ❤️‍🔥VACCINES CAUSE RSD/CRPS... EYE 4 AN EYE!

This has changed my life

It took me 2 years of thinking I was losing my mind to be Dx. I was a nurse and had a severe knee injury. The orthopedic doctor said my knee would never be the same but it would be much better than it was at the time. As the strange swelling appeared and what felt like millions of fire ants attacking me I realized it definitely wasn’t in my head and begged for answers no one could give me. Finally I meet a neurologist that knew in an instant what was happening to me and my journey with a diagnosis began 8 years ago. We think I actually had it 10 years ago. Soon after diagnosis I had a severe bout of kidney stones followed by emergency surgery and it went from my legs throughout my body. Thank God I don’t have any organ involved that we know of. This isn’t just a burning skin issue like some might think. I had what felt like crushing pain in my legs and then like someone lit me on fire at the same time. I truly dreamed of how I could amputate my own legs and stay alive to be taken to the hospital. I swallowed handfuls of pills just needing the pain to stop. I couldn’t think or move most of the time. I ended up quickly getting a pain pump and I get 3 drugs through it 24/7, Bupivacaine, dilaudid and Prialt. Though it has helped my life is nothing like it was. I have lost so much mobility and gained so much weight and it just keeps declining. With my Dr’s permission I started experimenting with thc (it’s legal both medicinally and now recreationally in my state. I found low dose thc gummies actually help me. It doesn’t take the pain away but it alters it in a way I can better handle it. I got of my Neurontin, valuim and Norco going this route. But, I’m still on a decline and we are now looking into a stimulater as my joints and back become worse and more painful. I can stand for only very short moments and rely on my wheeled Walker and electric wheelchair to get around. I have also become very sensitive to certain noises, loudness and pitches of some voices. A baby crying makes me want to rip my ears off!!!! When 3 or more of our adult children get together they try to over talk each other and I seriously have to leave the room.
I am so blessed to have a wonderful husband that has stood by my side through thick and thin and I seriously couldn’t have made it this far without him!!!!! God Bless all our warriors 💙❤️💙❤️💙❤️💙

Someone said I have this after telling them my pain issues. I’m not sure this is what I have. At times I feel more soon than I should abs to the extreme. A raindrop landing softly on my nose initially does not hurt but then within seconds and minutes the pain escalates to a full blown migraine and even with nausea and vomiting. Once my mum lightly touched the small of my back to get my attention. I instantly fell to the mall floor and for the next 4 months had extreme back pain. Once mum walking past me and to top of her sandals very gently touched my left big toe. Initially all good then bam, extreme pain for several years as my toe went through many changes and ended in my toenail coming off. Leading up to that my toe had a big bump in it. It felt line someone was drilling into the center of my toenail. Sometimes it felt like my toe was in a vice also. Sometimes I accidentally touch the hot glass oven when getting food out. Even though the contact was less than a second so normally no pain or damage, my skin blisters up as if the contact was 10-15 seconds. Once my sister was using a hair iron straightener on my hair. She gently hit me with it on my head. Yeah she’s a brat haha. Oh the pain escalated alright. It felt like there was an axe in my head and my head split wide open and deep. After I have a blood test it feels like the syringe is still on my arm and air being blown into my arm. Such an odd sensation. Those are a few examples of many. I always thought it was my body warning me against people who hurt me and are toxic to me.

Why didn't they include Stellate Ganglion Block as a solution?

Check out Spero Clinic in Fayetteville, Arkansas with Dr. K. She has amazing results!

yeah, NO PILLS,JUST a lot of words & BS !

No more CRPS pain? Please read.
About ten years ago I began to experience pain in my left foot that was simply excruciating, I thought it might be gout but after tests that was ruled out. I was eventually diagnosed with type 2 CRPS, no idea what triggered it. I was fortunate because my doctor allowed me to try Tramadol, and unlike any other PK, it was reasonably effective at 200-300mg a day. I was looking forward to living my life in a state of semi zombi-ism, that was the effect Tramadol had on my get up and go.
When the pandemic hit I began boosting my vitamin D levels, I was 5' 7" tall and about 19 stone, so I took 5,000 itu's every day, I still do.
A few months into my regime I had lost about a stone in weight, I put it down to our being on lockdown, but since then my weight has continued to fall, I now weigh 13 stone, but my eating habits really haven't changed.
The real benefit however has been this. About 3 months into my regime, I began to notice, or should I say, not notice, the background pain that always persisted, the Tramadol numbed it well, but it didn't stop it.
I slowly reduced my Tramadol intake over a 3 week period, the result?
I have had no neuropathic pain worth talking about any longer, I occasionally find there is mild discomfort, but nothing I would describe as pain.
I have not taken any Tramadol for about 18 months :).
Please try this, please, please try this, it cannot hurt you, most of you are vitamin D deficient period. 5,000 itu's a day for 3 months, maybe I am a unique case, but if you don't try it you will never know. God bless and I hope this helps some of you.

My mom has been suffering with this and all the doctors have done is put her on medication besides that is their anything else I do to ease the pain?

Nice at least I’m avocados I don’t feel pain 😳😳😳

Cant believe how ingnorant/uneducated the medical industry is about this problem that has been prevalent in so many...how nice the video says treatments are etc... it's just a cop-out to bill insurances and make them feel they took care of the problem, Not to mention how Pain management always assume someones an addict when they ask for certain meds they're familiar with.

Mirror therapy :o

If you're suffering from chronic pain look up "The mind body prescription" by Dr. Sarno, or "The great pain deception" by Steve Ozanich. LOOK INTO IT

I have complex pain syndrome since 15 years and it is worse now I am on lots of medication like
Gabapentin 800mg 4 times a day
Tramadol 200mg 4 times a day
NOVO GESIC 650mg 4 times a day
Amitriptyline 200mg one time a day
Vimovo 500mg 2 times a day

Nerve blocks once a month
Ketamine infusion every two weeks

Is there is a way to stop this madness

I have this and it’s the worst pain out there. The pain never goes away. When you have a day without it-your can’t help but think when is the pain going to Creep up on me

I have crps in shoulder does it ever get better

Iam use zeptol CR 300 tablate cps prblm

I want to walk so bad

holy crap if somebody get the this disease, that is a real hell world.

Treatment of CRPS




Most people who diagnosed with it: "Suicide is Badass"

Every CRPS patient has my sympathy. To see those patients suffering from their illness.... Seems like there is no justice or God in this world

I just wanna use my hand again 😔😭

I have CRPS across my entire left arm. After my surgery to remove lymph nodes for biopsy in left armpit. Now I cannot use my left arm without extreme pain! It gets swollen red purple color

Oof

How about this....the FDA needs to buck up, grow some balls, quit being influenced be big Pharma and approve Neridronate here in the USA, instead of approving a new boner pill every other day and IGNORING people SUFFERING IN PAIN!!
I apologize for the gruff language but we’ve all been quietly suffering too long with out access to the best drug available and closest thing to a cure. My wife has, And soon we can say had CRPS for 3 years. We been to Italy twice for infusion. They work. Quit settling for the ineffectual status quo here in the states. Write your congressman, write the FDA and make your voice heard! We send emails every 2 months. Tell your representatives that you’re tired of being drugged into a zombie state with seizure meds and ketamine.
If anyone is interested in information on how and where to get Neridronate in Italy, We can help. We’ve used two sites in Italy. One of the site is very affordable and the physician is awesome.
With CRPS time is not on your side and it rarely tends to go away on its own. You all are your own best health advocate because the government doesn’t care and our physicians aren’t knowledgeable enough about the disease.
My wife’s CRPS is almost gone. We are working with several other modalities to heal the after effects of nerve, muscle, bone and brain injury from this hideous disease, it doesn’t only affect the limb but the entire body.

I have CRPS. It got so bad I couldn’t even move and anything that touched my leg it hurts. I’m doing a little bit better but I’m still hurting.

I was a blue baby born breech and intersex ,I would cry from pain father always said I was acting out ,different things work for different people ,Doctors gave me what worked from 1968 until about 2020 ,I have had so many trials ,I thought at 65 I could rest ?

i have CRPS as a 12 year old xhild this effects my day to day life i am in a wheel chair and my NHS is terrible i have been like this since November and its july right now and treatment as just been starting .... i loose my concentration easily and my education becomes low.... i cannot do what a 12 year old ahould be doing! 😭

My mom has crps..

Please help me understand how surgery can help this condition. Having ankle surgery is why this whole nightmare began!

Have RSD CRPS for over 20 years every think that as been is true have been doing all and there is still more to do. This is hell to live with but we keep going👍😳😍

Thank you for your work. I have had this now for 12 years from an injury from a car accident. My left arm got entangled in the steering wheel and airbag, nearly tearing it off. The good news is through education and realizing my lifes habits needed to do a 180. The right medical team, diet, medicine, rest, fortitude big time. God bless.

I have CRPS I had it ever since I was born

Awesome . Thank you. 🤗❤️

I’ve been diagnosed with CRPS for 4+ years and I’m glad I’ve found this video