Genetic test uncovers Florida girl's extremely rare disorder

Rare disorders are not inherited from the parents.

Those beautiful big blue eyes

Lord Jesus, please Bless her, and please heal her

Bless her beautiful heart.
Praying for extremely good
care and proper treatment.
Sending love and prayers.
😇 🙏♥️🙏 😇
PS she’s a very beautiful child.

Genetic testing should be offered to all and it should be free. I hope your sweet girl improves in health. Best wishes from afar.

Bless her, Lord. Praying for all! Thank God for the progression of modern medicine. Keep the faith! 🙏❤

i think i can find a cure, if people gave me the chance to show that i can without getting me to do all the work just to find out I'm too late to save them

That had more to do with putting the kid through a hard time than deriving truth out of it.

My Huntington’s Disease story begins like most people in the HD community. With a family history. about a year ago I was diagnosed with having the defective Huntington’s gene. Yes, it is hard - and some days are much harder than others - but there are many positive noises coming from the Huntington’s experts about new research and treatments and that fills me with real hope. Have a look into gene silencing, it’s like something out of a science fiction movie, but it could be ground breaking! It was obviously gutting to have my fears confirmed but I at least know what I am up against and I know that it’s unlikely I’ll experience symptoms earlier due to having a similar CAG count. (A CAG count.
Huntington's Disease is a devastatingly aggressing disease, I have known that neurological disorders were aggressive. As I learnt more about Huntington’s I wanted to do something positive in what was a negative situation. I know it’s hard at times but you should try not to focus on the negatives. Try to turn them into positives. I am hopeful that a cure will be found as science is really doing all they can. We took part in a research project which involves a two day trip to Florida to the Huntington’s Disease Centre, We were opportunity to meet with Dr odia, A highly recommend herbalism with scientific medicine. There are lot to say about Dr Odia, I really want to thank God that this man was used to end my sorrow, All my pains and tears turn to joy from the day I came in contact with Dr Odia, We were educated more about the use of herbs and few purchase the herbs which I used for two month and three week's. To my greatness surprise it did work out for me. There is no need for anyone to have a date stamped on their forehead when they’re diagnosed with Huntington’s Disease. I would encourage anyone to seek a second opinion especially if they’ve been told there’s no hope. It’s also crucial to learn as much as you can about your diagnosis. Seek options. Find out about what’s out there that could help. Contact Dr Odia via( Dr Odia Herbalist Home on Facebook).

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My heart's broken for you. Doctors can work miracles these days. Praying for such a sweet little princess. God does listen. Love and hope from Canada.

Don't lose hope God hes always there Just have faith in God