Mystery of Fibromyalgia? Latest Scientific Discoveries

Thank you so much. What a simplified scientific explanation.

Has anyone thought it could be part of our diet?

Thank you. It’s been my experience that the most challenging symptom- chronic, widespread, intractable pain - is the one symptom doctors are NOT interested in treating (despite my success with traditional Rx pain relievers). No anti- depressant,SSRI, SNRI or bipolar meds improved my condition. Nor seizure meds. Nor muscle relaxers. Nor PT…
It’s incredibly frustrating for me to hear: we don’t know, more research is needed (but as a predominately female issue- we’re not going to spend $$ researching) AND just try the very expensive, unproven things that the anti-opioid industry is currently exploiting us with.
Lastly, every time I see a pharma commercial stating something like, “just OK is not ok” and “I DESERVE treatment that gives me my life back”- I want to throw my TV (or phone) out the window. As no doctor cares the treatment is not enough: just go home and find a way to live with it. OR the new one: it’s in your brain. Your neuroplasticity needs reformatting. (How do I do that? No one knows. Years of cognitive/dialectical behavioral therapy certainly didn’t do it). So I leave my tv/phone as is. Because fibromyalgia disables me to the point where I can’t work, so I need to take care of the possessions I have. The point is, why is it ok for some patients to require better treatment, while those like me are refused it- based on unscientific data that doesn’t make sense even on the face of it?
After years of watching Rx pain meds be reduced (and more reductions for 2024-THANKS, DEA!!) and watching overdoses from mostly illicit fentanyl and analogues, I continue to be baffled as to how reducing my pain medication reduces overdose numbers. Ya- I heard the “if we don’t give new patients Rx pain meds, we will reduce the addiction/overdose numbers.” Well, after almost 10 years with the overwhelming addiction/OD demographic being teens, early 20’s, you can’t convince me these people got addicted from prescriptions. So, people are still dying and people like me are suffering seemingly intentionally.
How is this OK?

Cure for me: Magnesium L Threonate, Benfotamine type of B1, B6 and D3...all OTC so no Rx needed...I got mine on Amazon. Note the Magnesium MUST be L Threonate.

P.S. I suffered for 7 years and no Rx helped me for longer than 30 days.

Thankyou @ellyninga👏this is exactly my experience. If there are any Drs. out there who have the courage to speak up and give us sufferers the right and REAL remedy it’s time to speak up!! WHY!! because it is excruciatingly painful and debilitating.🥹🥲

It’s from atrazine and glyphosate !!! I don’t have it or celiac disease or peripheral neuropathy all pain gone got my life back from crippled to happy

I am in lots of pain for about 3 years,nothing seams to help.

I’ve had Fibromyalgia and Arthritis for 30yrs and nothing I try helps 😢

Thanks for sharing

The world never drs like you god bless you for sharing keep up the great job

It would help if there were chapters.

The studies might be new but it is all the same old info.

You have such a peaceful presence. I appreciate this informative video. I used to think I suffered from rheumatic disorders until I was recently tested for autoimmune diseases. My lab work came back normal! I was so surprised. The negative result for Rheumatoid Factor and Negative result for Autoimmune Disease. This was last week and before this I had suffered pain and various symptoms since last August (2023). This is long-winded so I apologize for writing so much, but it explains some of the reason I am learning all that I can about Fibromyalgia & related disorders. ❤

No new info

Anyone try Low Dose Naltrexone?

Why don't more men have fibromyalgia?

Worthless info.

This is nothink new we been told this for years

I have ulnar neuropathy for past 3 years and neck pain. Doctors doubted its a mND motor neuron disease and they still following my disease to confirm what it is. Past 8 months i have several body pain and joint pain and doctor said its a fibromyalgia. And mytochondria is dysfunctioned

Thank you for the video but all the info you gave in this video was given in the 90s and so far nothing is conclusive. I have fibromyalgia since I was 16 and it’s been a nightmare after 20 years with it. I diet, workout and don’t do any drugs or alcohol and still some days I am bed ridden. My life went to sh.. and my dreams of being a bodybuilder and a successful business man are gone. I wish I could find something to help but nothing is a guarantee and the next day is just a wonder.

Anyone tried GeneInsight or doctor advocating for you to get genetic testing done to narrow down your options?

Mind body.

Can you develop fibromyalgia after a cervical fusion?

I do not agree. I have a high tolerance for pain. I don’t know I’m in pain till my blood pressure goes up. So no lower pain threshold can’t be it. I think it is a neurological and nerve issue and even a disease like lupus not coming to head.

I have it severe & end up in the ER at times. It's a living hell !!!😢 My life is - why live ? Nothing helps at all . Fed - up 😢

Not latest at all, this is old news.

Neuroplacticity brain rewiring is the way forward ! .

Fibromyalgia is FAKE, the doctors a d pharmaceutical companies have brainwashed people about this, you need to understand that your body has been damaged by years of nutritional neglect, change your eating habits and exercise routine

New?

Fibromyalgia is inflamed nerves by neurotoxins from pathogens like EBV or shingles. If you have any nerve disorders like this or trigeminal neuralgia MS or ALS etc follow Medical Medium for Truth and treatments. You need answers now not in 100 years.

I have suffered for decades and relate to what has been said by others all too well. I have to say that the content of this video was disappointing, in that, there is nothing new. I’ve known about cytokines etc for years but it makes no sodding difference with GPs here in the U K. I want to try natural therapies such as B1 but try❤ and get a GPs support, well you may as well plait fog! The medical profession just want to pump bodies with chemicals from drug companies. I tried them but ended up in A&E.

This is all old think.

You sir are not telling us anything new

I have been using cannibidoil and find it's the only thing that helps my fm. I still have some bad days and nights but compared to how I was this is a miracle. My night delirium ie zombiefied because of lack of sleep is 90% better than it was.

Being low in bicarbonates causes the body to run in a hyper inflammatory mode. New research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks.

It is extra frustrating when people don't believe you, thinking you're a drug seeker. I wouldn't wish the pain and fatigue on anyone.

Let me tell you doctors in Australia are no help

Dr says I have it, be buggered I’m not accepting that diagnosis

Sadly, Australians are too laid back to do anything about these issues. Australians are not even able to elect their own leader. The PM is beholden to his party, not to the people.

Steam sauna! And Swimming at the local gym has helped my fibromyalgia for years